Searchable abstracts of presentations at key conferences in endocrinology

ea0059p069 | Clinical practice, governance & case reports | SFEBES2018

Patient perception of provision of care for multiple endocrine neoplasia disorders in the UK compared to other EU member states

Grey Joanna , Breugmann Petra , Newey Paul

We report the results of the first Europe-wide survey of patients with multiple endocrine neoplasia (MEN) disorders by the European MEN Alliance (EMENA). METHOD: An online questionnaire was distributed via patient groups, social media and health professionals. A total of 284 responses were analysed. RESULTS: 35% (n=99) UK responses and 65% (n=185) from 17 other EU countries: 68% female, 32% male (UK; 75% and 25%). Disorders represented were: MEN1 n=2...